The Alzheimer’s Association website is an excellent resource for caregivers. To access the caregiver resources, click on “Life with Alzheimer’s” at the top of the page and then click on “Caregiver Center.” There you’ll find several major links. To get an idea of the breadth and depth of information provided, click on each one of these and take a look at the sub-links and their sub-links.
For example, “Daily Care” has sections on Behaviors, Communication, Activities, Respite Care, Memory Loss, Personal Care and Medical Care. Click on these titles to see what is included in each. Under Personal Care you’ll find information and advice about issues such as Incontinence, Bathing, Dressing, Grooming, and Dental Care, just to name a few.
Under “Get Support” you’ll find sub-sections on Finding Your Local Chapter, Message Boards, Support Groups, Your Health, and Care Training. There are Message Boards for Caregivers, Spouses’ or Partners’ Caregivers and Younger-Onset Alzheimer’s Disease or other dementias. The section on Support Groups includes information on how to find one locally. There are also online Support Groups operated by the Association.
If you click on “Planning for the Future” you’ll see topics such as Legal Matters, Care Options, Pay for Care, Safety, Dementia and Driving, as well as detailed explanations of Medicare, Medicare Part D, Medicaid, Insurance, and other related issues.
The section for “Kids and Teens” is especially helpful for families having young people affected by the Alzheimer’s disease of a grandparent or other close elderly person. It includes introductory information, videos, an explanation of how Alzheimer’s affects the brain, and stories for different age groups.
There is also an impressive list of 101 activities kids and teens can do with a person who has Alzheimer’s. In addition, there are resources for parents, including advice on how to talk to children and teens about Alzheimer’s disease. Finally there is a link to purchase Maria Shriver’s book, “What’s Happening to Grandpa?”
The Community Resource Finder section can help you find local resources, including your local Alzheimer’s Association chapter, various types of facilities, geriatric care managers, day care programs, elder law attorneys, home care professionals, support groups, hospices and transportation.