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The Caregivers Bill of Rights

I have the right:

1. To take care of myself. Caregiving is not an act of selfishness. It will give me the capability of taking better care of my loved one.

2. To seek help from others even though my loved ones may object. Only I can recognize the limits of my endurance and strength.

3. To maintain facets of my life that do not include the person I care for, just as I would if he or she were healthy. I know that I do everything that I reasonably can for this person, and I have the right to do some things just for myself.

4. To get angry, be depressed, and express other difficult feelings occasionally.

5. To reject any attempts by my loved one (either conscious or unconscious) to manipulate me through guilt, and/or depression.

6. To receive consideration, affection, forgiveness, and acceptance for what I do, from my loved ones, for as long as I offer these qualities in return.

7. To take pride in what I am accomplishing and to applaud the courage it has sometimes taken to meet the needs of my loved one.

8. To protect my individuality and my right to make a life for myself that will sustain me in the time when my loved one no longer needs my full-time help.

9. To expect and demand that as new strides are made in finding resources to aid physically- and mentally-impaired persons in our country, similar strides will be made towards aiding and supporting caregivers.

This Bill of Rights has been circulating on the internet for some time and is attributed to various persons on different sites. This version is taken from www.caregivers/utah.gov, where it is attributed to Jo Horne.

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One Response to “The Caregivers Bill of Rights”

  1. James Hunt from Boston says:

    I know what you’re talking about. I have 2 brothers and 3 sisters. They criticize me constantly. I’m at the end of my rope as far as what to do about it. It is very hurtful, but I know in my heart I’m doing the right thing. I recently had to order hospice care for her based on what the doctor told me. EVERY one of my siblings strongly disagrees with my decision. Plus, they all live out of town and when they DO come for short visits they don’t spend much time with her. They just complain all the time.

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