Why Informing Others Is Important: When a person is diagnosed with Alzheimer’s it is usually very difficult to decide whether or not to make the diagnosis public, but there are many advantages to doing so. One is that it will help others be more understanding and compassionate with the diagnosed person. In addition, revealing the diagnosis gives friends and family members an opportunity to participate in planning for the future. Perhaps one of the most important reasons to go public is that it enables the patient and the caregiver to receive understanding and emotional support.
How to Let People Know: First, decide who will announce the news – the person who was just diagnosed, a family member, or close friend. The announcement may be made at a family meeting or you may want to inform people individually. Sometimes sending out a letter can be helpful because it gives people time to digest the news before talking with you about it. This avoids putting them on the spot.
Special Issues to Consider When Informing a Teenager or Child: Be especially thoughtful when informing young people about the illness. It’s important to be honest with them about the situation. With younger children you need to use simple language they can understand. Tell them the basic facts but don’t give more information than you feel they can handle.
If You Decide to Keep It Confidential: You have the right, of course, to keep the diagnosis confidential, but realize this can sometimes lead to stress for everyone involved. It prevents both the patient and the caregiver from getting much-needed support from friends and family members.